Healthcare and Big Data

Digital Specters and Phantom Objects

Authors: Ebeling, Mary

  • Fills an important gap in scholarship on Big Data and its social consequences
  • Presents a unique examination of Big Data, patient privacy, and health marketing from a sociological perspective 
  • Utilizes a personal and ethnographic lens to investigate how data personhood is constructed
  • Addresses marketing use of private health information
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Buy this book

eBook $79.99
price for USA (gross)
  • ISBN 978-1-137-50221-6
  • Digitally watermarked, DRM-free
  • Included format: EPUB, PDF
  • ebooks can be used on all reading devices
  • Immediate eBook download after purchase
Hardcover $99.99
price for USA
  • ISBN 978-1-137-50220-9
  • Free shipping for individuals worldwide
  • Usually dispatched within 3 to 5 business days.
About this book

This highly original book is an ethnographic noir of how Big Data profits from patient private health information. The book follows personal health data as it is collected from inside healthcare and beyond to create patient consumer profiles that are sold to marketers. Primarily told through a first-person noir narrative, Ebeling as a sociologist-hard-boiled-detective, investigates Big Data and the trade in private health information by examining the information networks that patient data traverses. The noir narrative reveals the processes that the data broker industry uses to create data commodities—data phantoms--or the marketing profiles of patients that are bought by advertisers to directly market to consumers. Healthcare and Big Data considers the implications these “data phantoms” have for patient privacy as well as the very real harm that they can cause.

About the authors

Mary F.E. Ebeling is Director of Women’s and Gender Studies, and Associate Professor in Sociology at Drexel University, USA. Her research examines the intersections of gender and race, technologies, digital culture, data privacy, marketing and medical capitalism. She was a visiting research fellow in sociology at the University of Surrey, UK, from which she also holds a PhD.

Reviews

“After companies marketed baby products to Mary F.E. Ebeling for years after a miscarriage, she wanted to know why. In this book, Ebeling exposes the so-called wizardry of big data marketing as a baffling amalgam of unreliable inferences and impenetrable bureaucracies. Her resilience and curiosity buoy a careful inquiry into health data brokers’ and users’ business models, aspirations, and effects on all of us. Combining the best of social science and self-reflection, the book is at once moving and well-theorized, deeply felt and precisely rendered. This is the work we need to push the privacy debate to a new level: the personal rendered political in lapidary prose and illuminating analysis.” (Frank Pasquale, Professor of Law, University of Maryland, and Affiliate Fellow, Yale Information Society Project)

“Mary Ebeling is a magnificent storyteller, and in this book she has performed a miracle, turning the potentially mind-numbing topic of “big data” into a gripping detective story, an intellectually and emotionally gut-wrenching excavation of digital surveillance in our everyday lives.” (Stuart Ewen, Distinguished Professor, The Graduate Center, City University of New York (CUNY), USA and author of “Typecasting: On the Arts & Sciences of Human Inequality” (co-authored with Elizabeth Ewen, 2008) and “PR! A Social History of Spin” (1996))

“In this compelling exposé, Mary Ebeling recounts a very personal narrative of her quest to uncover how her health information was exploited by data brokers and marketers. This book will be an eye-opener for readers as they realise the full extent of how intimate data about their bodies and lives have become valuable commodities in the global data economy.” (Deborah Lupton, Centenary Research Professor, News & Media Research Centre,  University of Canberra, Australia and author of the “Quantified Self” (2016) and “Digital Sociology” (2015))

Table of contents (8 chapters)

  • Out of Death, a Birth

    Ebeling, Mary F. E.

    Pages 1-25

  • The Rise of the Databased Society

    Ebeling, Mary F. E.

    Pages 27-48

  • Privacy and Data Phantoms

    Ebeling, Mary F. E.

    Pages 49-66

  • Coercive Consent and Digital Health Information

    Ebeling, Mary F. E.

    Pages 67-94

  • The Biopolitics of Lively Data

    Ebeling, Mary F. E.

    Pages 95-113

Buy this book

eBook $79.99
price for USA (gross)
  • ISBN 978-1-137-50221-6
  • Digitally watermarked, DRM-free
  • Included format: EPUB, PDF
  • ebooks can be used on all reading devices
  • Immediate eBook download after purchase
Hardcover $99.99
price for USA
  • ISBN 978-1-137-50220-9
  • Free shipping for individuals worldwide
  • Usually dispatched within 3 to 5 business days.

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Bibliographic Information

Bibliographic Information
Book Title
Healthcare and Big Data
Book Subtitle
Digital Specters and Phantom Objects
Authors
Copyright
2016
Publisher
Palgrave Macmillan US
Copyright Holder
The Editor(s) (if applicable) and The Author(s)
eBook ISBN
978-1-137-50221-6
DOI
10.1057/978-1-137-50221-6
Hardcover ISBN
978-1-137-50220-9
Edition Number
1
Number of Pages
XIII, 170
Number of Illustrations and Tables
3 b/w illustrations
Topics