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Palgrave Macmillan

Genetics from Laboratory to Society

Societal Learning as an Alternative to Regulation

  • Book
  • © 2008

Overview

Editors:
  1. Gerard Vries

    1. University of Amsterdam, Netherlands

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    You can also search for this editor in PubMed   Google Scholar

  2. Klasien Horstman

    1. Technical University Eindhoven, Netherlands
      University of Maastricht, The Netherlands

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    You can also search for this editor in PubMed   Google Scholar

Part of the book series: Health, Technology and Society (HTE)

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Table of contents (9 chapters)

  1. Front Matter

    Pages i-xiii
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  2. The ‘Unknown’ Practice of Genetic Testing

    • Gerard de Vries
    Pages 1-16

  3. Constructing Results in Prenatal Diagnosis: Beyond Technological Testing and Moral Decision-Making

    • Myra van Zwieten
    Pages 17-36

  4. Genetic Diagnostics for Hereditary Breast Cancer: Displacement of Uncertainty and Responsibility

    • Marianne Boenink
    Pages 37-63

  5. Lifestyle, Genes and Cholesterol: New Struggles about Responsibility and Solidarity

    • Klasien Horstman
    Pages 64-89

  6. Detecting Familial Hypercholesterolaemia: Escaping the Family History?

    • Klasien Horstman, Carin Smand
    Pages 90-117

  7. Genetics and Insurance: New Technologies, New Policies, New Responsibilities

    • Ine Van Hoyweghen
    Pages 118-137

  8. Work, Health and Genetics: Problems of Regulation in a Changing Society

    • Ruth Benschop, Gerard de Vries
    Pages 138-154

  9. Genetic Risks and Justice in the Workplace: The End of the Protection Paradigm?

    • Rein Vos
    Pages 155-170

  10. Learning from the Work that Links Laboratory to Society

    • Gerard de Vries, Klasien Horstman
    Pages 171-190

  11. Back Matter

    Pages 191-222
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Keywords

About this book

Based on detailed studies of the actual use of genetic testing in context, this book looks at the ethical and political questions raised by the expanding role of genetic information in society. In contrast to the established perspective which focuses on individual freedom, the authors emphasize a pragmatic approach focussed on societal learning.

Reviews

'...provides a rich understanding of the social context and complexities of genetic testing, across a range of disorders and including both micro-level, family-specific aspects of genetic testing and the social, third-party areas of insurance and employment...I recommend it highly.' - Angus J. Clarke, Human Genetics

Editors and Affiliations

  • University of Amsterdam, Netherlands

    Gerard Vries

  • Technical University Eindhoven, Netherlands

    Klasien Horstman

  • University of Maastricht, The Netherlands

    Klasien Horstman

About the editors

RUTH BENSCHOP University of Maastricht, the Netherlands MARIANNE BOENINK University of Twente, the Netherlands KLASIEN HORSTMAN University of Maastricht, the Netherlands INE VAN HOYWEGHEN University of Maastricht, the Netherlands CARIN SMAND University of Maastricht, the Netherlands and the Dutch Transplantation Foundation REIN VOS University of Maastricht, the Netherlands GERARD DE VRIES University of Amsterdam, the Netherlands and Scientific Council for Government Policy, The Hague, the Netherlands MYRA C.B.VAN ZWIETEN Academic Medical Center, Amsterdam, the Netherlands.

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