Overview
- Fills an important gap in scholarship on Big Data and its social consequences
- Presents a unique examination of Big Data, patient privacy, and health marketing from a sociological perspective
- Utilizes a personal and ethnographic lens to investigate how data personhood is constructed
- Addresses marketing use of private health information
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Table of contents (8 chapters)
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Front Matter
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Back Matter
Keywords
About this book
Reviews
“After companies marketed baby products to Mary F.E. Ebeling for years after a miscarriage, she wanted to know why. In this book, Ebeling exposes the so-called wizardry of big data marketing as a baffling amalgam of unreliable inferences and impenetrable bureaucracies. Her resilience and curiosity buoy a careful inquiry into health data brokers’ and users’ business models, aspirations, and effects on all of us. Combining the best of social science and self-reflection, the book is at once moving and well-theorized, deeply felt and precisely rendered. This is the work we need to push the privacy debate to a new level: the personal rendered political in lapidary prose and illuminating analysis.” (Frank Pasquale, Professor of Law, University of Maryland, and Affiliate Fellow, Yale Information Society Project)
“Mary Ebeling is a magnificent storyteller, and in this book she has performed a miracle, turning the potentially mind-numbing topic of “big data” into a gripping detective story, an intellectually and emotionally gut-wrenching excavation of digital surveillance in our everyday lives.” (Stuart Ewen, Distinguished Professor, The Graduate Center, City University of New York (CUNY), USA and author of “Typecasting: On the Arts & Sciences of Human Inequality” (co-authored with Elizabeth Ewen, 2008) and “PR! A Social History of Spin” (1996))
“In this compelling exposé, Mary Ebeling recounts a very personal narrative of her quest to uncover how her health information was exploited by data brokers and marketers. This book will be an eye-opener for readers as they realise the full extent of how intimate data about their bodies and lives have become valuable commodities in the global data economy.” (Deborah Lupton, Centenary Research Professor, News & Media Research Centre, University of Canberra, Australia and author of the “Quantified Self” (2016) and “Digital Sociology” (2015))
Authors and Affiliations
About the author
Bibliographic Information
Book Title: Healthcare and Big Data
Book Subtitle: Digital Specters and Phantom Objects
Authors: Mary F.E. Ebeling
DOI: https://doi.org/10.1057/978-1-137-50221-6
Publisher: Palgrave Macmillan New York
eBook Packages: Social Sciences, Social Sciences (R0)
Copyright Information: The Editor(s) (if applicable) and The Author(s) 2016
Hardcover ISBN: 978-1-137-50220-9Published: 28 September 2016
Softcover ISBN: 978-1-349-69939-1Due: 15 August 2016
eBook ISBN: 978-1-137-50221-6Published: 27 September 2016
Edition Number: 1
Number of Pages: XIII, 170
Number of Illustrations: 3 b/w illustrations
Topics: Gender Studies, Big Data/Analytics, Knowledge - Discourse, Sociology of the Body