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Autistic Community and the Neurodiversity Movement

Stories from the Frontline

Editors: Kapp, Steven K. (Ed.)

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  • The first book to bring together a large collection of neurodiverse contributors to talk about events that shaped the movement, and which they themselves were involved with
  • Focuses on activists’ direct experience effecting change for people who identify as autistic rather than abstract accounts that reflect on autism’s social construction or essence
  • Provides a one-stop shop for readers interested in the history and ideas of the neurodiversity movement and how these ideas have shaped production of expert and especially lay knowledge about autism
  • Gathers a collective of autistic activist/academic voices and engages in current theoretical debates around knowledge production and epistemic authority within (critical) research on autism
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  • ISBN 978-981-13-8437-0
  • This book is an open access book, you can download it for free on
Hardcover 51,99 €
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Softcover 51,99 €
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About this book

This open access book marks the first historical overview of the autism rights branch of the neurodiversity movement, describing the activities and rationales of key leaders in their own words since it organized into a unique community in 1992. Sandwiched by editorial chapters that include critical analysis, the book contains 19 chapters by 21 authors about the forming of the autistic community and neurodiversity movement, progress in their influence on the broader autism community and field, and their possible threshold of the advocacy establishment. The actions covered are legendary in the autistic community, including manifestos such as “Don’t Mourn for Us”, mailing lists, websites or webpages, conferences, issue campaigns, academic project and journal, a book, and advisory roles. These actions have shifted the landscape toward viewing autism in social terms of human rights and identity to accept, rather than as a medical collection of deficits and symptoms to cure.

About the authors

Steven K. Kapp is a Research Fellow in Sociology at the University of Exeter, UK, working on the Wellcome Trust-funded project Exploring Diagnosis: Autism and Neurodiversity. With backgrounds in public policy, education, psychology, and disability studies, he researches the lived experiences, support needs, and quality of life of autistic people.


“This book is a landmark, foundational text chronicling the birth and evolution of a new civil rights movement in the thoughts and words of the folks who made it happen. It should immediately be taught in any courses that touch upon autism, neurodiversity, and the history of the disability rights movement, and is destined to be regarded as a classic description of oppressed and marginalized people fighting their way toward autonomy and self-determination.” (Steve Silberman, author of NeuroTribes: The Legacy of Autism and the Future of Neurodiversity)

“This volume will be essential reading for anyone seeking to understand the seismic shift in thinking about autism brought about by the neurodiversity movement. Embodying the disability rights motto, ‘nothing about us without us’, this collection of 19 chapters by autistic activists charts the formation, growth and influence of autistic self-advocacy and the neurodiversity movement. Steven Kapp has brilliantly edited and crafted a volume that challenges, informs and enlightens, while not shying away from controversies and debates.” (Professor Francesca Happé FBA FMedSci, Professor of Cognitive Neuroscience, King's College London, Past-President of International Society for Autism Research)

“Autistic advocates and the neurodiversity movement have radically changed understandings of autism across the world. In this outstanding collection, Steven Kapp brings together a collection of some of the most powerful campaigners to describe how they have achieved so much. Their accounts provide a vital reminder of the fundamental importance of their work and of the struggles that continue to this day. Everyone with an interest in autism and in justice should read it.” (Professor Liz Pellicano, Department of Educational Studies, Macquarie University, Australia)

Table of contents (22 chapters)

Table of contents (22 chapters)
  • Introduction

    Pages 1-19

    Kapp, Steven K.

  • Historicizing Jim Sinclair’s “Don’t Mourn for Us”: A Cultural and Intellectual History of Neurodiversity’s First Manifesto

    Pages 23-39

    Pripas-Kapit, Sarah

  • From Exclusion to Acceptance: Independent Living on the Autistic Spectrum

    Pages 41-49

    Dekker, Martijn

  • Autistic People Against Neuroleptic Abuse

    Pages 51-63

    Murray, Dinah

  • Autistics.Org and Finding Our Voices as an Activist Movement

    Pages 65-76

    Tisoncik, Laura A.

Buy this book

  • ISBN 978-981-13-8437-0
  • This book is an open access book, you can download it for free on
Hardcover 51,99 €
price for Spain (gross)
Softcover 51,99 €
price for Spain (gross)

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Bibliographic Information

Bibliographic Information
Book Title
Autistic Community and the Neurodiversity Movement
Book Subtitle
Stories from the Frontline
  • Steven K. Kapp
Palgrave Macmillan
Copyright Holder
The Editor(s) (if applicable) and The Author(s)
eBook ISBN
Hardcover ISBN
Softcover ISBN
Edition Number
Number of Pages
XIX, 330
Number of Illustrations
1 b/w illustrations, 6 illustrations in colour